Navigating Post-Tubal Ligation Syndrome

Choosing a method of permanent birth control is a significant decision, but can provide a sense of control over one’s reproductive health. Tubal ‘sterilisation’ or ‘ligation’, commonly known as getting your “tubes tied,” is a popular option for those seeking a permanent contraceptive solution.

However, some women have reported experiencing a range of symptoms post-procedure, collectively referred to as Post-Tubal Ligation Syndrome (PTLS). In this article, we will delve into what PTLS is, its symptoms, and the current state of research.

Defining Post-Tubal Ligation Syndrome:

Post-Tubal Ligation Syndrome is a term used to describe a variety of symptoms experienced after undergoing tubal ligation. These symptoms can include:

  • Irregular periods
  • Painful periods
  • Bloating
  • Hormonal imbalances
  • Pelvic pain
  • Mood swings
  • Worsened premenstrual symptoms.
  • Hair loss
  • Skin changes
  • Changes in sexual desire or pain during sex
  • Heavy periods

PTLS is not currently a medically recognised condition, remaining a subject of debate within the medical community. However, evidence is growing both from data collected within our clinic and the medical literature.

Why PTLS happens is not clear, possibilities for why PTLS symptoms occur include:

  • Menstrual blood passage being prevented
  • Compromising of the blood and nerve supply to the ovaries resulting in hormonal changes and altered progesterone levels
  • A internal reaction of the body to titanium, the metal commonly used in the clips

Fact or Fiction?

While numerous anecdotal reports exist, scientific evidence linking PTLS to tubal ligation is limited. A limited number of research studies have struggled to establish a clear connection between the procedure and the reported symptoms. Many experts argue that some symptoms attributed to PTLS may be coincidental or related to other factors, such as aging, lifestyle, or pre-existing health conditions.

Why so much Controversy?

The controversy surrounding PTLS primarily stems from the lack of a standardised definition. In addition, a lack of awareness amongst family doctors/ gynaecologists means patient concerns may be dismissed as due to other causes.

Some healthcare providers argue that attributing various symptoms to tubal ligation can lead to unnecessary anxiety among women considering the procedure. On the other hand, advocates for PTLS recognition argue that dismissing women’s reported experiences may hinder further research and understanding of potential long-term effects. There is certainly very little research into the topic, with only one reputable published paper in the last 10 years.

Why we Need to do More:

The psychological aspect of PTLS cannot be overlooked. Women who believe they are experiencing symptoms related to tubal ligation may face frustration, anxiety, and a sense of isolation. It is crucial for healthcare providers to acknowledge and address these concerns with empathy, offering support and guidance. By collecting and publishing evidence to support its existence, we can educate medical professionals and improve the access to treatments for those with PTLS.

Moving Forward:

As research continues, it is essential for both healthcare providers and patients to engage in open and honest communication. Women considering tubal ligation should be informed about the potential risks and benefits, as well as the current state of research on PTLS. Recognising the importance of individual experiences and perspectives will contribute to a more comprehensive understanding of women’s reproductive health.

What can be done for those suffering from PTLS?

For women who believe they are suffering from PTLS then a thorough review of symptoms, including their relationship to tubal ligation must be conducted. This should be by a suitably trained tubal surgeon, with experience in PTLS and reversal surgery.

Following initial review of data (January 2024), collected by tubal surgeon Mr Sam Dobson at the Female Sterilisation Reversal Clinic, 92% of women experiencing PTLS symptoms following sterilisation experienced a significant improvement or complete resolution of PTLS symptoms, following reversal of sterilisation surgery.

Mr Dobson is an advocate for the existence of PTLS and the benefits of reversal surgery. Data collection is ongoing and will be published once enough cases have been collected.

 

Finally:

Post-Tubal Ligation Syndrome remains a controversial and debated topic within the medical community. Evidence establishing a clear link between tubal sterilisation, PTLS and then resolution of symptoms following reversal is needed.

As discussions and research on this topic continue, it is crucial for healthcare providers and patients to communicate openly, fostering a supportive environment.

If you feel you are affected by PTLS, please get in touch by contacting us at femalereversals@gmail.comor phone 0115 9662111 to speak to us, or join our support community on Facebook.